About Me

Saturday, October 18, 2008


When Levi was a baby he had a lot of birthmarks and they kept appearing so the doctor kept track of them because it is a sign of a disease called neurofibromatosis, once thought to be what "the elephant man" had. Even if he had had it (which he does not), we were reassured that it was not that big of a deal except in extreme cases. It is characterized by lots of benign tumors, sometimes small, sometimes larger. This is the story of Jessica Stone who has a very active case, but handles it in an amazing way. She had to choose to become deaf in order to remove a tumor and had 30 days to plan. What would you do if you knew that in 30 days you would never hear again?


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